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Showing posts from June, 2017

When

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When will all people be looked at as fellow human beings instead of black, white, male, female, agender, transgender, gender fluid, Muslim, Christian, Jewish, atheist, Buddhist, gay, straight; fat, thin, rich, middle class, poor ... other ... as "those people"?

When will Christians practice what Jesus lived and taught - that the greatest Commandment is LOVE. Not pick and choose who you love. Not love if they are like you; if they believe what you believe;or if they treat you well ... love everyone.

When will hate be a word rarely used, not wielded without thought: I hate this song; I hate her hair; I hate this jacket; I hate myself; I hate anyone and anything that doesn't make me feel good?

When will people who disagree with our views be seen as someone with a different point of view rather than our enemy?

When will we stop judging others based on religion, skin color, who they choose to marry, worth, gender, wealth, ethnicity, appearance, and myriad other things and accept …

We'll Have Nothing Left

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I've been packing for weeks. By the time I get finished packing, we'll have nothing left in our house ... or so it feels! 

Packing two girls for two weeks of resident camp, two boys for one week of resident camp, and two adults for sixteen full days at camp is no small task. The logistics of resident camp for children with food allergies and family camp for someone with multiple autoimmune illnesses, mobility issues, and medication side effects makes the entire process even more interesting.

For me, packing involves lists - lists of things to be packed, things to ask Camp, things to do before we leave, and things to do after we get there. 

These lists included...

To pack:
- food for lunch and dinner for 16 days and breakfast for 8 days
- pots, pans, dishes, utensils, etc.
- medications and supplements
- uv protective sleeves (sun "allergy" side effect of one or more medications)
- mobility devices, compression gloves, knee brace, gloves to wear when hiking on crutches and kay…

Killing Me

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I usually don't post about political things, but reading about the proposed healthcare bill that would replace "Obamacare" terrifies me. Should our current healthcare system be replaced by this atrocity, it could kill me. And others. Literally.

The majority of people on Medicaid are disabled, elderly, mentally ill, and children. I've read a lot in the past couple days about any cut in funding putting these people at risk. At risk of what, they don't usually spell out, so I'll do it for you. It puts elderly people, children, mentally ill people, the otherwise uninsured, and disabled people at risk of getting more ill. At risk of dying. 

Should I lose my Medicaid, I would not be able to afford health insurance. It would mean going off of the medications that I take that keep me functional, because I wouldn't be able to afford them. If I go off of these medications, I will no longer be able to walk. My joints would deteriorate to a greater extent, and quickly.…

How Old?

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Sometimes birthdays catch me off guard.

Yes, I knew Haley's birthday was coming up - that it's today. We got her a gift and planned a (albeit joint birthday / graduation / Father's Day) celebration. What I failed to do was wrap my brain around the fact that Haley is fifteen today. 15. One year away from sixteen. How the heck did that happen? How is my third child that old???

Looking back over the past year, I came to the realization that most of the highlights of Haley's year have involved performing in some way shape or form...

In Androcles and the Lion at Camp Calumet Drama Camp:


In Epoch Arts' Mini Production, Collide, in which she got to create her own character and write her own part:


In Haunted House (at Epoch Arts, of course!):


And made leaps and bounds in creating SFX make-up gore:


 In Epoch Arts' Arts Response: Responding to Hate with Love in which she sang "Losing" by Tenth Avenue North and in Dinner Show, in which she sang "Light in the Hallw…

Beautiful Things

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In celebration of Pastor Wayne Gollenberg, on his retirement....

Endings are emotional and difficult ... and exciting, as they are also beginnings.

As you begin this next exciting time of your life, I find myself having difficulty expressing the appropriate amount of gratitude for your presence in and impact on my life over these past fifteen or so years. What is stunningly clear to me is that you have been the vehicle through which God has done many beautiful things, not only in my life, but in others' lives and in our Church (a people, not a steeple).

Many people may see your retirement- your leaving our congregation - as painful, a loss. We will all miss you and all you do for the Body of Christ. It seems to me, though, that some are missing the fact that in many ways you will remain a part of all of us, and a part of our Church, always.

Over the years, you have time and again preached just the sermon I needed to hear at particularly low or stressful times. Consumed with worry o…

The Cost of Living

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I could minimize the pain I experience, the exhaustion, the migraines, and the overall ill feeling that clings to my being. I could choose to avoid doing things that wrack my body with pain and necessitate days of recovery time afterwards. I could merely exist.

I choose to live. I choose to pay the quite high cost of living in this body. I choose to pay the price of pain, nausea, fatigue, even pain-induced panic attacks in order to live life to the fullest.

Every day I weigh the cost of doing anything from mundane tasks to fully investing myself in a day full of theatrical rehearsals, the care and keeping of a horde of teenagers, and doing daily mom things. At times, a trip to the grocery store necessitates rest for the remainder of the day. Other times, I can keep going all day ... or for a few days ... and then spend two or three days, sometimes a week, paying back the debt of energy and body use.

The wrench in the works is that I never know how much I have in my being-a-functional-per…